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The ALS Association, MN/ ND/ SD Chapter

ALS (amyotrophic lateral sclerosis) is a degenerative disease of the central nervous system, characterized by the death of the motor neurons. ALS results in gradual, progressive weakness and wasting away of voluntary muscles, often leading to total paralysis. The life expectancy of a person living with ALS is usually two to five years from diagnosis. There is no known cause or cure for ALS, but advances in medical technology are allowing people with ALS to lead more independent and productive lives. Research continues in hopes of discovering a cause and cure.  

The ALS Association MN/ND/SD Chapter provides a range of programs and services at no charge that meet the unique and evolving needs of the ALS community, including our Durable Medical Equipment Loan Pool, the Hrbek-Sing Communication and Assistive Device Program, the Jack Norton Family Respite Program, and the Home Safety Program. We also offer support groups, a volunteer program, a media library, national and state advocacy, consultation and support while contributing to global research activities. Our Chapter supports four certified treatment centers of excellence, two recognized treatment centers and three other ALS clinics in our service area. Chapter programs allow those living with ALS to live the fullest life possible, which has a direct impact on individuals, families and the broader community.

In the last year, generous support has allowed us to accomplish the following:

  • Provided resources and consultation to 600 individuals living with ALS

  • Delivered over 720 assistive communication devices to individuals who have lost their ability to speak due to ALS.

  • Expanded the installation of smart home technology and to give individuals living with ALS greater control of their home environment.

  • Connected over 400 individuals living with ALS to more than 1,500 pieces of equipment through our Durable Medical Equipment Loan Pool.

  • Subsidized over 7,000 hours of respite care for caregivers who are supporting a family member or friend living with ALS.

  • Engaged nearly 200 people in support groups.

  • Invested more than $760,000 in ALS research.